Here’s what happens with the blog when I’m feeling good: I have tons of thoughts & plans in my head & they never make it to the blog because I’m so busy trying to get everything done that I need to do while I feel good! It’s like a vicious cycle.
Similar to how things went the very first round of chemo, I have had a great week this week. I have been able to enjoy the sunshine – either in my little backyard shelter or in the shade of trees & bushes. I’ve been able to go on walks in the evenings with Tom. I feel normal – well maybe a warped version of normal. 🙂 I have felt pretty level emotionally – not seesawing too much until today.
I think the reason I’m more sensitive today is because the family is trying to pack to go camping and I have yet to learn how to get ready for camping without stressing out from all the prep work. Each year, we go to Brownsville (sooo far…) 🙂 and camp at the Pioneer Park during the city’s yearly celebration. This year is the 125th event – amazing! The kids have a ball because the Picnic is so family friendly. Up till this year, all of us except Tom have competed in the Spelling Bee & and placed either first or second. Blaine loves it because he usually places First in his division and gets himself some spending money for the rest of the weekend. 🙂 I haven’t done too shabbily either myself. Usually I end up besting the kids’ school principal. Now that’s fun! LOL
The flip side of feeling good is that I end up – like I stated earlier – trying to pack too much into the short amount of good time that I have. And then that wears me out. And then I get cranky. And then the circle continues…
On Tuesday, it was my turn to take someone to the doctor. Tom had his 6 month checkup with his neurologist & it looks like they have his seizures under control. He hasn’t had any episodes in such a long time. We are so blessed for that. But the best thing was he had a really bad headache that day. I know that sound weird, but I’m pretty sure most of you have had a time when you’ve had a medical issue & then gone to the doctor only to have it NOT manifest itself that day, and the doctor says you’re fine. Well, this was a great day for him to have a headache. Dr. Choi asked about it, and wondered if this was a “just-once-in-a-while” issue or an everyday occurance. When we told him that the headaches happen every day, he looked back at Tom’s chart & couldn’t find where he’d had his last MRI. So in 2 weeks, Tom will be getting his brain scanned & we’ll find out whether he has one or not! 🙂
Tomorrow is my fourth session of chemo. I liken it to riding a roller coaster – you know those old rickety sounding wooden ones that have breathtaking climbs until you get to the top & plummet to the bottom, just to whip around a corner & do it again. I’m up at the top of one of those climbs. It’s slowing down, and preparing to tip over the edge. So I’m gonna raise my hands high, and let out a yell, because as you know that’s the best way to ride the scariest ones.